In a heart-wrenching documentary, “I Am: Celine Dion,” the legendary singer offers a candid glimpse into her battle with stiff person syndrome, a rare neurological disorder that has affected her for 17 years.
The film captures a chilling medical crisis during a physical therapy session, where Dion’s body suddenly stiffens, leaving her unable to move or speak. The intense moment showcases her vulnerability and resilience.
Dion’s journey with stiff person syndrome began long before her official diagnosis in 2022. She struggled with symptoms during her 2018 and 2019 tours, forcing her to postpone and eventually cancel shows.
With unflinching honesty, Dion reveals her fears and frustrations, from feeling embarrassed by her lack of control to worrying about her ability to perform. Her physical therapist suggests that her condition may be triggered by overstimulation, making her passion for singing a double-edged sword.
Through this intimate documentary, Dion hopes to raise awareness about stiff person syndrome and inspire others to persevere through adversity. Despite her challenges, she remains determined to return to the stage, sharing her gift with the world once again.
