Millie and Louis’s journey to parenthood was filled with both joy and heartbreak. Expecting twins, they were thrilled—until they received the devastating news that one of their babies, Skye, had anencephaly, a condition that meant she wouldn’t survive long after birth. Skye passed away shortly after she was born, leaving her parents to grieve while caring for her surviving twin.
In the midst of their pain, Millie and Louis found a way to honor Skye’s memory and help other families facing similar losses. They founded the “Skye High Foundation” and introduced the purple butterfly sticker, a small but meaningful symbol placed near newborns in NICU units. These stickers quietly communicate that a family has lost one of their babies in a multiple birth, helping to prevent unintentionally hurtful comments during an already emotional time.
The purple butterfly has become a symbol of love, loss, and resilience. It allows families to share their story without having to explain it repeatedly, offering a sense of understanding and compassion. Millie and Louis know they can’t change what happened to Skye, but they are committed to making a difference for others. Through their foundation, they provide support groups and resources to help parents cope with the unimaginable pain of losing a child.
As Millie reflects, “Ultimately, I will never be able to stop this from happening, but the more support groups we can set up and initiatives like the stickers we can put in place, the better it will be. It’s the hardest thing anyone has to deal with.” Their dedication to helping others is a testament to their strength and compassion, ensuring that Skye’s legacy lives on in a way that brings comfort and support to families in need.
